T Plus 65

Twelve straight days of I.V. fluids concluded this past Monday when Jan received her second dose of the anti-viral medication. When we told the doctor that Jan was now drinking at least two liters a day, he said let's try going without daily I.V. fluids and see how it goes. Today (Thursday) we had more labs and her renal functions were within normal limits, and she was not dehydrated, so the extra fluid intake is working. There really hasn't been much to report these past days. The urinary tract issues still continue as we wait for the BK Virus to come under control. Possibly there has been some minor improvement in the urinary frequency and urgency, but we still have a ways to go. The other main issue right now is weakness and fatigue. Jan's legs are like rubber. Nearly all of her complaints (weakness, fatigue, fuzzy vision, puffy cheeks, high blood sugar) are all being attributed to the steroids (specifically the Prednizone). She is being tapered off this med, so we are hopeful that many of these complaints will soon subside. Some of her other complaints (tremors) are also medication (Tacrolimus) related, and this drug has also been lowered in dosage. All of her lab work continues to be excellent. Most of her difficult recovery right now is due to the medication, the viral infection, and the trauma of a bone marrow transplant. The viral infection is being treated, the meds are being reduced, and the rest just takes time. Our goal today is to get through Day-65. Tomorrow, we'll try to get through Day-66. We know that we are approaching Day-?? when things will be much, much better.