T Plus 38

Well Jan has been out of the hospital for two weeks and a day. The first week we had to make daily trips to the clinic for blood tests, and weekly x-rays. That has now been reduced to twice-a-week labs, and continued weekly chest x-rays. During the past two weeks Jan has had chest pains associated with her hiatal hernia, and painful hiccups, as well as some continued soreness in her throat. Most of those symptoms have been lessened with medication. Her primary issues now seem to be continued lack of taste, and fatigue. It takes almost no effort to tire her out. Even the shortest of walks leave her breathless and ready to take a seat. At times she seems so sedated that simple conversations are a chore, and often times she will fall asleep sitting upright in her chair. Walking is difficult, as she needs constant support, even to go very short distances. I continue to wait for the day when I will see a little "pep in her step". The doctors continue to blame the sleepiness, drowsiness, fatigue, and lack of concentration on the many medications she is forced to take daily (about 15 different meds, some taken 3 times daily...........you do the math). Many of the meds have numerous possible side effects, and who knows what the interaction affects are.

Yesterday morning she had another bone marrow biopsy (number seven if memory serves). As usual, the results won't be know for at least a week. These are always nerve-wracking times, to say the least. The apartment continues to serve our needs, but we do look forward to the day when we can return home. It's hard to believe that it will be six months on Tuesday since she was first diagnosed with AML. It's been a long and hard six months........to be sure, but we are hopeful that the worst is behind us and that brighter days lay ahead.

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