DAY - 92

It’s no wonder that the BMT doctors insist on patients living near Moffitt Clinic for several months post transplant. The hospital visits necessary during this process are almost daily, and often extend for eight or nine hours. As an example, our itinerary for this week and next looks something like this:

Monday June 02 – Labs, physical therapy evaluation
Tuesday June 03 – Bone marrow biopsy, labs, visit with doctor
Wednesday June 04 – Labs, 4-hour transfusion of fluids
Thursday June 05 – Labs, meet with Physician Assistants
Friday June 06 – Physical therapy
Monday June 09 – Appointment with Neuro to remove surgery staples, physical therapy
Tuesday June 10 – Labs, meeting with PA’s
Wednesday June 11 – Physical Therapy
Thursday June 12 – Surgery to remove triple catheter, and replacement of port
Friday June 13 – Physical therapy
Monday June 16 – Pulmonary Function Test, labs, meeting with doctor

Well, you get the idea. We spend a LOT of time at Moffitt Clinic. Today we went for labs only and the normal two hour visit turned into six hours when it was determined that Jan needed I.V. fluids. As we approach 100 days post transplant (on June 12th.) we expect this pace to slow down. Overall, Jan continues to get a little stronger each day. This is all very encouraging, especially since we had so many weeks where we saw almost no improvement, and at times regressed.